Researcher Profile: Dr. Zhou at Washington University in St. Louis
As The Clayco Foundation continues to propel RVCL research and patient-focused efforts, we want to take a second and highlight a very exciting research project spearheaded by Dr. Zhou at Washington University in St. Louis. Dr. Zhou is a distinguished professor in the Department of Biomedical Engineering, and has numerous publications, grants, and editorial positions to his name. He is a phenomenal [...]
A Philly-area woman’s medical mystery leads to a diagnosis shared by only 43 families worldwide
April 11, 2022 Barbara Small was a pediatric nurse at Children’s Hospital of Philadelphia, enjoying her work, her family and traveling with her husband. At the age of 59, she was involved in a cycling accident and required hip surgery soon after. A week after returning home, her vision became blurry which lead to a series of appointments and misdiagnosis over [...]
The Clayco Foundation RVCL Venture Teams Up with Experienced Researchers from the Netherlands
The Clayco Foundation RVCL Venture is teaming up with a highly qualified and RVCL-experienced group of researchers in the Netherlands to increase the scope of research and of patient identification and aid. This kind of global connection is one of the exact reasons this venture was created and an example of where effort is being focused. With this trans-Atlantic relationship, research [...]
RVCL Research Spotlight – Dr. Rejendra S. Apte MD, Ph.D.
The Clayco Foundation and RVCL.org are excited and privileged to work with scientific and medical professionals around the world on various research projects that may aid the overall RVCL.org mission statements. One such researcher is Dr. Rejendra S. Apte MD, Ph.D. at Washington University in St. Louis. Dr. Rajendra Apte is the Paul A. Cibis Distinguished Professor of Opthalmology and Visual Sciences, [...]
RVCL Clinical Trial Underway
The Clayco Foundation and RVCL.org are actively involved with novel research projects and clinical trials that may benefit patients afflicted with RVCL disorder. Currently, the Foundation is working with several centers of academic excellence, such as Washington University School of Medicine and the University of Pennsylvania, and hopes to continue expanding this network. The current clinical trial supported is a phase [...]
Launching RVCL.org
Feb 3, 2022 Author: Matt Halpert As we launch into a new year, The Clayco Foundation is set to expand and accelerate efforts within the realm of Retinal Vasculopathy with Cerebral Leukoencephalopathy (RVCL), a rare genetic disorder that needs more attention. This will include a focus on education, aiding in earlier patient identification, promoting research, and propelling treatment options into the [...]
