The Clayco Foundation is a 501(c)(3) organization dedicated to providing education and support for patients, researchers, and doctors. Retinal Vasculopathy with Cerebral Leukoencephalopathy (RVCL) is a rare genetic disorder that causes progressive damage to the brain, eye, kidney, and liver. There is currently no cure for RVCL, something The Clayco Foundation aims to change.
Due to the extremely rare occurrence of the disease, patients have a difficult time finding doctors that can quickly or accurately diagnose RVCL. Due to the overlapping symptoms with more common diseases, patients can often be misdiagnosed with multiple sclerosis, diabetes, SLE, vasculitis, and brain tumors. Nonetheless, if these RVCL patients can be diagnosed earlier, research efforts can be furthered, and these patients need not go through unnecessary treatments and procedures. Helping patients, doctors, and researchers dealing with RVCL is a primary focus of The Clayco Foundation.